Living Experience

Epilepsy is not uncommon. Many people have it, or more precisely, suffer from it - to a greater or lesser extent. Some people manage the condition better than others. The difference, in my experience, is the support of the people around you, and yes, the medical care available to you. By this, I mean the medicine. However, the more effective the medicine in controlling epilepsy attacks, the more expensive it is.

Stories can be very powerful. Many people who suffer from epilepsy are not afraid to share their experiences, although doing so inevitably brings to memory the unpleasantness (to put it mildly) of these episodes. There is also the concern that people might look askance at you once they know you suffer from epilepsy. Hopefully, these stories will help epilepsy sufferers identify with others and find ways in which their condition can be better managed. These stories are also for relatives, friends, colleagues and even strangers to understand the condition better and thereby empathise with these people. At least you will know that they are not demon-possessed!

My epileptic seizures left me jobless and divorced

Cycling lowers his rate of epilepsy

Ming Ying

Remembering my first seizure

Arlo's Story – Living with Dravet Syndrome

Samantha’s Story — Altruism and Courage Fighting Epilepsy

My life with Epilepsy


Real life Epilepsy stories


Note: The stories found through these links do not suggest that any one method of treatment is appropriate for an epilepsy sufferer. Each must consult a qualified medical doctor for examination, diagnosis and treatment.

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